{"id":30360,"date":"2024-08-23T11:59:23","date_gmt":"2024-08-23T14:59:23","guid":{"rendered":"https:\/\/diariodebordo.net\/?p=30360"},"modified":"2024-08-23T11:59:26","modified_gmt":"2024-08-23T14:59:26","slug":"psoriase-brasil-promove-3o-simposio-doencas-cronicas-de-pele","status":"publish","type":"post","link":"https:\/\/ftp.diariodebordo.net\/?p=30360","title":{"rendered":"Psor\u00edase Brasil promove 3\u00ba Simp\u00f3sio Doen\u00e7as Cr\u00f4nicas de Pele"},"content":{"rendered":"\n

O encontro abordar\u00e1 a necessidade de pol\u00edticas p\u00fablicas, novos tratamentos e a jornada de pacientes com hidradenite supurativa, doen\u00e7a psori\u00e1sica e dermatite at\u00f3pica<\/em><\/strong><\/p>\n\n\n\n

Pacientes que sofrem com doen\u00e7as cr\u00f4nicas de pele \u2014 como hidradenite supurativa (HS), dermatite at\u00f3pica (DA) e doen\u00e7a psori\u00e1sica \u2014 enfrentam uma jornada desafiadora para reconquistar sua qualidade de vida, a come\u00e7ar pela identifica\u00e7\u00e3o dos sintomas. Assim, visando o avan\u00e7o de iniciativas que busquem mitigar os efeitos adversos destas condi\u00e7\u00f5es, a Psor\u00edase Brasil realiza evento in\u00e9dito em S\u00e3o Paulo com m\u00e9dicos especialistas, legisladores, pacientes e pesquisadores. O encontro gratuito e aberto ao p\u00fablico ocorre na Assembleia Legislativa de S\u00e3o Paulo (ALESP) na quinta-feira, 29 de agosto, das 9h30 \u00e0s 12h30. Interessados podem ir diretamente ao local ou assistir ao vivo pelo canal de YouTube da ALESP.<\/p>\n\n\n\n

Dados<\/strong> \u2013 Tendo em vista que n\u00e3o h\u00e1 censo oficial sobre estas doen\u00e7as no Pa\u00eds, a associa\u00e7\u00e3o de pacientes Psor\u00edase Brasil luta para que haja o mapeamento da preval\u00eancia das mol\u00e9stias entre a popula\u00e7\u00e3o brasileira. Desta forma, dados coletados pela pr\u00f3pria ONG por meio de seu Cadastro de Pacientes, disponibilizado em https:\/\/psoriasebrasil.org.br\/<\/a>, alimenta sua rede de informa\u00e7\u00f5es, bem como o setor da sa\u00fade nacional.<\/p>\n\n\n\n

As informa\u00e7\u00f5es apuradas d\u00e3o conta de que 77% dos m\u00e9dicos n\u00e3o acertaram o diagn\u00f3stico dos pacientes acometidos por hidradenite supurativa. Tal panorama, consequentemente, provoca danos pessoais \u2014 84% afirmam se sentir envergonhados, al\u00e9m de 73% relatarem ter que lidar com preconceito. J\u00e1 quanto \u00e0 dermatite at\u00f3pica, 68% dizem afetar seu desempenho profissional, e, ainda mais alarmante \u00e9 o dado de que 78% t\u00eam o sono afetado, interferindo na disposi\u00e7\u00e3o e produtividade no dia a dia.<\/p>\n\n\n\n

Com rela\u00e7\u00e3o \u00e0 doen\u00e7a psori\u00e1sica, que engloba a psor\u00edase e a artrite psori\u00e1tica, 76% exp\u00f5em ter vergonha das manchas avermelhadas e escamosas aparentes em sua pele, sendo que 80% j\u00e1 se sentiu deprimido, 67% j\u00e1 deixou de ir a algum lugar em raz\u00e3o da mol\u00e9stia, e 44% avaliam prejudicar-se no trabalho em decorr\u00eancia da doen\u00e7a. Al\u00e9m disso, estudos apontam que at\u00e9 50% dos pacientes com artrite psori\u00e1tica permanecem sem diagn\u00f3stico, e o atraso pode ser de at\u00e9 cinco anos desde o in\u00edcio dos sintomas.<\/p>\n\n\n\n

Relev\u00e2ncia do evento<\/strong> – No momento em que se debate a inclus\u00e3o de novos tratamentos pelo Sistema \u00danico de Sa\u00fade (SUS) e pelos planos privados de sa\u00fade (ANS), a partir de Consultas P\u00fablicas que v\u00eam sendo realizadas no Brasil \u00e0s doen\u00e7as cr\u00f4nicas de pele, a Psor\u00edase Brasil busca engajar legisladores, m\u00e9dicos, pacientes e familiares. O 3\u00ba Simp\u00f3sio Doen\u00e7as Cr\u00f4nicas de Pele ainda abordar\u00e1 a regula\u00e7\u00e3o, o atendimento e o fornecimento de medicamentos pela Aten\u00e7\u00e3o Especializada do Estado de S\u00e3o Paulo, al\u00e9m das conquistas alcan\u00e7adas pela Frente Parlamentar paulista, desde a sua implanta\u00e7\u00e3o em 2023. Na oportunidade, tamb\u00e9m ser\u00e3o apresentados o servi\u00e7o e os desafios enfrentados pelo Hospital da Universidade Federal de S\u00e3o Paulo (UNIFESP), centro de refer\u00eancia e atendimento das doen\u00e7as cr\u00f4nicas de pele no estado.<\/p>\n\n\n\n

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Servi\u00e7o:<\/strong><\/p>\n\n\n\n

O qu\u00ea:<\/strong> III Simp\u00f3sio Doen\u00e7as Cr\u00f4nicas de Pele<\/p>\n\n\n\n

Quando:<\/strong> 29 de agosto (quinta-feira), das 9h30 \u00e0s 12h30<\/p>\n\n\n\n

Onde:<\/strong> Audit\u00f3rio Teot\u00f4nio Vilela – Assembleia Legislativa de SP (ALESP)<\/p>\n\n\n\n

Como participar:<\/strong> presencialmente ou pelo YouTube da ALESP<\/p>\n\n\n\n

Programa\u00e7\u00e3o e envio de link de transmiss\u00e3o:<\/strong> doencasdepelebrasil.org.br\/3simposio\/<\/a> <\/p>\n\n\n\n

Cr\u00e9dito fotos<\/strong>: Freepik\/Banco de Imagens.<\/p>\n","protected":false},"excerpt":{"rendered":"

O encontro abordar\u00e1 a necessidade de pol\u00edticas p\u00fablicas, novos tratamentos e a jornada de pacientes com hidradenite supurativa, doen\u00e7a psori\u00e1sica e dermatite at\u00f3pica Pacientes que sofrem com doen\u00e7as cr\u00f4nicas de pele \u2014 como hidradenite supurativa (HS), dermatite at\u00f3pica (DA) e doen\u00e7a psori\u00e1sica \u2014 enfrentam uma jornada desafiadora para reconquistar sua qualidade de vida, a come\u00e7ar<\/p>\n","protected":false},"author":7,"featured_media":30361,"comment_status":"open","ping_status":"open","sticky":true,"template":"","format":"standard","meta":{"_eb_attr":"","inline_featured_image":false,"_joinchat":[],"footnotes":""},"categories":[63],"tags":[],"class_list":["post-30360","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-destaques"],"acf":[],"yoast_head":"\nPsor\u00edase Brasil promove 3\u00ba Simp\u00f3sio Doen\u00e7as Cr\u00f4nicas de Pele - Experi\u00eancias que conectam marcas, pessoas e momentos<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/diariodebordo.net\/?p=30360\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Psor\u00edase Brasil promove 3\u00ba Simp\u00f3sio Doen\u00e7as Cr\u00f4nicas de Pele - 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